For the past three years, every month Jagat Ram travels from Hapur district of Uttar Pradesh to Delhi’s Institute of Human Behaviour and Allied Sciences (IHBAS) to fetch medicines for his younger sister. She suffers from depression, the most common mental illness in the country. “It all began at her in-laws’ place. She used to complain of torture,” recalls the 35-year-old. In 2007, after losing her newborn she slipped into shock. It was a crushing blow to her already shaky marriage. She became quiet, stopped doing household chores, did not care for her appearance and even stopped bathing.
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When the Centre launched National Mental Health Programme (NMHP) in 1982, one of its objectives was to allay such ignorance and integrate mental healthcare in general healthcare by introducing mental health centres in each district. These centres are headed by psychiatrists who travel to interior parts of the district and provide treatment to patients. The programme floundered.
“Very few patients visit the doctor,” says R K Bairagi, head of NMHP’s district mental health programme (DMHP) for Sehore district in Madhya Pradesh. “While some fear social stigma, the rest are superstitious. We are planning to take the help of tantriks to bring mentally ill patients to the centre. Tantriks deal with many such patients and could be helpful to bring them here. They would perform their rituals and after that ask patients to visit the centre,” he adds.
Even if it works it will be only half the solution. If people actually approach the Sehore DMHP centre it will not be able to handle the load. The Sehore DMHP centre is the only hospital, other than the Mental Hospital Indore and Gwalior Mental Hospital, to cater to the mentally ill people of Madhya Pradesh. Between 1996 and 2007, the Central government had sanctioned four other DMHP centres in Shivpuri, Dewas, Mandala and Satna districts, but all of them have become dysfunctional.
Even the Sehore centre is under-staffed. “We advertised for the posts of psychiatrists and psychologists for this centre at least four times but no one responded.
There is shortage of psychiatrists and psychologists in the state because there are no PG courses on these subjects in any of the six medical colleges of the state,” says Bairagi, who shuttles between Sehore and his hometown Bhopal, about 50 km away. He comes to the centre only twice a week.
Secretary of the Madhya Pradesh State Mental Health Authority, R N Sahu, says DMHP failed in the state because it is not a priority for the authority. The money sanctioned for Satna and Jabalpur centres was returned to the Centre because the district authorities were not interested in the programme.
“I had sent proposals to revive the defunct centres and begin DMHP in five new districts more than a year ago. But the proposals were never forwarded to the Centre,” he says. The situation is no better in other states. The programme has made little headway in the past three decades.
“Although DMHP is supposed to be active in 123 districts (of 652 districts), it is barely functional in most districts,” states the mental health policy group, established in May 2011 to create a mental health policy for the country and provide recommendations to improve DMHP in the 12th Five-Year Plan.
The group submitted its report in June 2012. “…barring islands of good performance, the DMHP is yet to achieve its objectives,” says the group.
Inconsistent fund flow, lack of trained staff, lack of coordination between departments and non-availability of psychotropic drugs and psychological treatment are plaguing the programme.
The group’s report indicates that states are reluctant to take over funding of DMHP. As per the guidelines, the Centre will fund DMHPs for five years, after which the respective state governments shall take over the programme.
Rahul Shidhaye, clinical psychiatrist working with advocacy group Public Health Foundation of India, points out another flaw in the programme design. “NMHP is the only public health programme in the country where finances are routed through the Directorate of Medical Education,” he says.
“The deans of medical colleges are busy training psychiatrists and are not concerned about public healthcare whose foundation rests on awareness and reduction of stigma.”
In the 12th Five Year Plan, the government plans to redesign the programme and expand it to all the districts in the country. But will it be effective given that India has never undertaken an official mental health survey?
Several analysts are sceptical. A similar effort in 2002 to revamp NMHP and expand it to 22 districts had significantly changed the scope of the programme.
“The new policy reduced emphasis on access to services and community participation (which were the prime aim of the 1982 policy) and moved towards provision and distribution of psychotropic medication,” say Sumeet Jain and Sushrut Jadhav from University College London, the UK, in a paper published in March 2009 issue of Transcultural Psychiatry.
The authors suggest that the authorities revamped the programme without analysing the problems that were ailing NMHP. “...there is no indication of who was involved in this (consultation) process and what resulted from it,” it notes.
The study holds lessons for Union Ministry of Health and Family Welfare, which plans to revamp its mental healthcare system. It has drafted a Mental Health Care Bill to replace the Mental Health Act of 1987.
The Cabinet cleared the Bill on June 13. In all probability, the Bill will be tabled in Parliament in the Monsoon Session, beginning on August 5, and will be cleared. To facilitate its implementation the ministry, for the first time, is charting a mental health policy.
Biological reality of mental illness
Generally, it is considered that the dysfunction occurs due to problems with neurotransmitters, or chemicals that help neurons in the brain communicate. For example, the level of the neurotransmitter serotonin is lower in individuals who suffer from depression. Similarly, disruption in neurotransmitters, dopamine, glutamate and norepinephrine, is linked to schizophrenia. Such understanding helps in the development of drugs to treat the problem. Biological psychiatry is now an established branch of psychiatry and uses imaging techniques like psychopharmacology and neuroimmunochemistry to pinpoint the problem. Using these techniques, researchers, in the past five years, have identified genes that influence susceptibility to five common psychiatric disorders, including bipolar disorder. Their finding was published in medical journal The Lancet. Using the technology, researchers at the National Institute of Mental Health in the USÔÇêare developing a classification system that would help differentiate the structure and function of a mentally ill brain from that of a healthy one. This will help researchers understand why a traumatic event leads to post-traumatic stress disorder, neurology of hallucinations and how drug addiction rewires the brain. There is still a long way to go. Scientists are nowhere close to understanding the brain the way they understand heart, kidneys and other parts of the body. |
Poverty, gender discrimination, alcohol use, stress of modern life, conflicts and natural disasters—most of the identified risk factors for mental illness are common in India. But in the absence of an official mental health survey, there is little data on the number of people who suffer from the illness.
The most reliable and often quoted figure that provides some sense of prevalence of the illness is a report by the National Commission on Macroeconomics and Health (NCMH) published in 2005. According to the report, at least 6.5 per cent of the Indian population—more than 80 million people—suffer from serious mental disorders, such as schizophrenia, bipolar disorder and obsessive compulsive disorder, with no discernible rural-urban difference. The share of mental illnesses is 8.5 per cent of the total burden of diseases in the country. These figures will grow substantially, with increasing population, the report suggests.
Very little direct evidence is available at community levels. But the few that are available provide a worrying picture. An analysis of data from the Chennai Urban Rural Epidemiology Study, published in PLoS One on September 28, 2009, shows 15.1 per cent of people in urban and rural areas of Chennai suffer from depression. The study found that the problem is more pronounced among women and people from low-income groups. More than 16.3 per cent women suffer from depression compared to 13.9 per cent men. About 19 per cent people in low-income groups are depressed.
Analysts say the figures are merely an indication of a deep abyss because the studies often take into account only those who have at some point of time visited a doctor or have acknowledged their problem. Given the stigma attached to mental illness, very few people are open to diagnosis and treatment. A joint publication by the National Human Rights Commission and the National Institute of Mental Health and Neurosciences in 2008 notes that “morbidity due to mental illness is set to overtake cardiovascular diseases as the single largest risk in India by 2010”.
Adverse effects of these illnesses are rising in the country. According to WHO, depression and other mental illnesses are the major causes behind suicide. Data from the National Crime Record Bureau shows there has been a rise in the cases of suicide in the country. More than 135,000 people committed suicide in 2012 alone—a 22.7 per cent increase from 2002 (see ‘Depressing growth’).
In recent years, the list of risk factors for mental illnesses has become longer. Increasing intensity and frequency of natural disasters have been identified as major contributors to mental illnesses, especially in children and adolescents. A study published in peer-reviewed journal BMC Psychiatry in 2007 shows even a year after the super cyclone ravaged coastal Odisha in 1999, almost one-third of the children could be diagnosed with post traumatic stress disorder (PTSD), a severe mental condition.
It is relevant to note that mental disorders are a risk factor for many noncommunicable diseases.
According to a 2012 report by WHO, more than 3 per cent of the world’s population suffers from depression, which predisposes people to heart diseases and diabetes. Those with depression and schizophrenia have 40 per cent to 60 per cent greater chance of dying prematurely either by committing suicide or from unaddressed health problems such as cancer, cardiovascular diseases, diabetes and HIV infection. Noncommunicable diseases also increase the likelihood of depression, notes the report. This holds a threat for India where noncommunicable diseases are fast taking over communicable diseases.
The 2011 World Economic Forum Report warns that mental illness poses a major threat to the global economy. In view of the potential harm that mental illnesses can cause, governments worldwide are gearing up to set up a system to tackle the problem. India is under tremendous pressure, both from international forums and from civil society at home, to contain the illnesses. The government believes this can be done only by introducing the Mental Health Care Act and the Mental Health Policy.
But are these interventions robust enough to ensure that the mentally ill receive treatment as well as care?
Thirty-year-old Tamanna lives a life of rejection. Last year, her husband and his family brought her to Indore Mental Hospital. Doctors diagnosed her with bipolar disorder and admitted her to hospital. Within a couple of months, they declared her healthy and asked her family to take her back home. But no one wanted to take her back. Tamanna kept writing to her family for six months, but there was no response. Even her mother did not respond. Finally, the hospital administration had no choice but to shift Tamanna to a nearby shelter home with due permission of the Chief Judicial Magistrate.
Tamanna is not the only one who has been ostracised because of mental illness. A warden at the hospital, who did not wish to be named, says she has witnessed at least 12 such cases in the past two years where family members refused to take back their wards even after doctors certified complete recovery. More often than not women face institutionalisation and desertion. Indore Mental Hospital alone has more than 40 women inmates compared to 20-odd men.
More than 50 per cent of patients admitted to a mental hospital often end up staying there for five years or more. The most unfortunate aspect of this problem is that these patients have been in the hospital for years not because of treatment-related reasons but because their families have abandoned them. Prolonged hospitalisation has further impaired their socio-vocational skill, points out the National Human Rights Commission (NHRC) in its report submitted to the Supreme Court in February this year. NHRC has been reviewing mental health institutions in the country since 1997. That year the apex court had asked it to monitor mental health hospitals at Agra, Ranchi and Gwalior following complaints of human rights violation.
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What’s it like to have panic attacks
I was moving up in the world. As an ambitious young business promoter in the healthcare industry, I had a bright career ahead of me. I was happily married for eight years and was blessed with two beautiful daughters. But at the age of 32, I suddenly started getting panic attacks. The first time I had the attack, I was jolted awake in the middle of the night, doused in sweat. There was an ice cold sensation in my chest. An unknown fear overpowered me. My wife, with the help of a neighbour, took me to a hospital in Gurgaon. The doctors overruled any cardiac or other related problems. But the sensation kept getting worse. My doctor friends asked me to see a psychiatrist. I was lucky enough to be educated, have disposable income and time to get help. A young psychiatrist in Gurgaon started my treatment with anti-depressants and counselling. But my friends in the healthcare industry discouraged me from anti-depressants. They said a headstrong person like me could not be depressed. I had always felt the same. Perhaps I was wrong; they were wrong. Although what triggered my panic attack remained a mystery, I started feeling better. I thought I had recovered and stopped medication on my own. Over the next few months I changed job and moved to Ahmedabad. New challenges and more salary kept me busy. Then one night, I again felt the cold sensation in my chest and was sweating profusely. I rushed to a physician. Based on my history, he advised me to see a psychiatrist. I was back to square one. My new psychiatrist was a renowned one. On an average, he was seeing 100 patients a day. He did not have time for me. His juniors took my details and prescribed medication, which I disliked. So I changed the doctor. I told him I want to reduce my dependence on medicines. He prescribed me fewer medicines and advised me to go to a psychotherapist. A psychotherapist is not a doctor, but a trained professional who helps increase an individual’s sense of wellbeing through therapeutic interaction and counseling. My 50-year-old psychotherapist has a couch. I lie down and share all my fears, feelings, daily experiences and talk for an hour. I feel relaxed and stress-free after the session. There are days when I would look down from my apartment on the 9th floor and get thoughts of committing suicide and get paralysed. Will I jump from this window? Can I control my legs? Should I seek help of my wife? The next day I analyse my feelings with my psychotherapist. She listens to me and guides me about the thoughts. I am in a process of re-discovering myself. She is my main stay these days to fight depression and feel better. Every week I attend three to four sessions with her. Practicing yoga, pranayama and walking gave me some relief but only psychotherapy has helped me. |